Listen up autistic spectrum parents! ADHD? You come too.
If you have a child on the spectrum, I would suggest running, not walking, to the nearest book store (or on-line store) and ordering Dr. Melvin Kaplan’s Seeing Through New Eyes.
After reading his book I made an appointment and he evaluated both my kids on Thursday and Friday.
First of all. My children have 20/20 visual acuity. They can read a chart like nobody’s business. Any “typical” eye doctor would say they see just fine.
But imagine this scenario….
The doctor has a whiffle ball hanging on a string from the ceiling. He tells Riley they will play catch. He lets it go, and as it travels toward her, she flinches. It hits her in the face as she unsuccessfully tries to grab it. They try several times. She never does catch the ball.
He puts a pair of prism lenses on her and sends the ball in her direction. She reaches out and snatches it. No flinching.
Next he takes a rolling pin, and asks her to hold both ends. With the prism lenses still on he sails the ball her way and she bats it with the surface of the rolling pin. She nails it every time. The look on her face is precious. She’s stoked. Without being asked, she continues, counting to 100. She doesn‘t miss once. Until this moment I’ve never seen a determined look on her face when doing anything physical or athletic.
I could go on and on about the exam, but the gist is, her ambient vision is incredibly messed up (while her focal vision is fine). This doctor claims we can fix that, and he says when we do, her anxiety will go out the window. Well, ladies and gentlemen, anxiety is the major issue left here. Get rid of that and this girl is going to FLY!
Dr. Kaplan is an older gentleman with a calm relaxed demeanor. During Riley's evaluation he said offhandedly in his NY accent,
"This one is really bright. She's gonna be just fine." I reached out and snatched his sentiment like Riley snatched that ball and tucked it in close to my heart. I believe it.
She'll need to wear glasses for a about a year and it will require a commitment from us to do vision therapy using prism lenses at home, for twenty minutes, twice a day.
But wait! There’s more! Let’s talk about the boy.
Since we were there with the expert we had Seth evaluated too. Turns out, Seth’s eyes are not functioning in tandem. They are taking turns. Therefore, he can’t attend to anything for too long. Therefore, he is up and down from the dinner table, 100 times during a meal because he literally can’t sit still. Therefore he jumps on the couch constantly rather than just sitting to watch TV. This explains why he is constantly butting into us like a little ram. The doctor did a bunch of exercises with him that called for using both eyes together and after less than 20 minutes Seth was slumped in his chair, rubbing his eyes, exhausted from the effort.
Might we have just saved ourselves an ADHD diagnosis down the road?
Dr. Kaplan says kids like Seth often become class clowns to cover up the hard time they are having in school. (We already see this in him to some extent).
He says once the eyes are working properly, new permanent maps in the brain will be made. The kids won’t need glasses once those maps are locked in place.
So, by next week, both my babies will be wearing glasses and looking cuter than ever, (if that’s even possible)?
2007.
It’s gonna be a great year.
*There are a lot of doctors doing “vision therapy” but few are doing what this guy is doing. I would suggest reading the book if you are interested in prism lenses/vision therapy. Dr. Kaplan also works with adults. He's in Tarrytown NY.
Saturday, January 13, 2007
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25 comments:
I was thrilled to read this
I am as close to sobbing as I can be right now and full of goosebumps.
Can it be true?
Michelle, you are a wonder! Do you ever sleep? I am consistently amazed at your energy and positive focus. What a terrific story - I can't wait to share it.
You are motherhood personified, Michelle. The prototype, the mold, the original model for mothers everywhere.
Here's some of what's so great about you as a mother: you're always questioning, even yourself. You stand with and for your children, no matter what. You see and encourage their potential. You celebrate their successes.
I know, I know. No one's perfect. But you're mothering is darn close, my love. Darn close.
love.
Ha! You should have seen me a few years ago. Almost convinced my child was just a screaming brat.
and I was screaming right back at her.
We've come a long way.
I continue to learn.
Thanks for your kind words.
I'm dying to take my 3 asd girls to him but at $600 for the first visit and his office accepts no insurances it's impossible. Same old autism story = the best people to help our kids are expensive and don't take insurance. The neurology, develepmental pediatrician dingbats who tell us jack squat are all "in network"...
Yes, it cost 2800K for both kids evals, therapy and glasses. That's not including getting there, and the hotel.
It is no joke how helping our children often means teetering on the brink of financial disaster.
No family should have to decide between covering rent or providing their child with appropriate medical care and therapies.
The whole ASD epedimic is a medical/political/insurance travesty, from start to finish.
Years from now we will look back in shame at our doctors, our politicians and the pharmaceutical companies that pull their strings.
Whoops!
Make that $2,800.00
He's expensive, but not THAT expensive!!!
Did I hear you say depression? I've got to hear more, please keep us posted on how this therapy works. What do you do with the prism?
I didn't say anything about depression in this post but he is working with schizoprenics and bipolar patients as well.
The therapy is done using glasses with prisms in them. You do a bunch of exercizes while wearing them and slowly your eyes are retrained and new pathways are formed in the brain. The changes are permanent.
I love how you "took his sentiment and held it close to your heart". Beautiful.
Hi Michelle, very interesting post. We had James' eyes checked a couple of years ago, very similar story. Perfect vision in the normal eye test, but not with other visual skills. Interestingly, reading your bit about Seth reminds me so much of Matthew our younger son, never really thought about it in relation to him. Thanks for the info.
Michele, I'm always so inspired from your explorations. Truly. I have a two year old and this info is invaluable just to know. What a blessing. So glad you found this resource.
Chills. I have chills. You are an incredible mother. I will have to look into this.
Thanks!
Great information, thanks for drawing my attention to it, I will definitely check it out!
You rock, every day, all day long, your whole life!
Amazing tale, Michele. LIke the others, I'm in awe of your energy and ingenuity as a mother.
Keep us informed on the progress.
Loved this, "She doesn‘t miss once."
And neither do you Michelle....
Brilliant! Wonderful!
I agree with Jerri. You are a super mom!
:)
Thank you for this, Michelle. I can't wait to read the book. I tell my son all the time that I wouldn't change a thing about him, but boy if I could remove a few road blocks that make his life so hard...WOW!
thanks, michelle! i'm checking out this book asap!
thanks for the link michelle! i'm on my way to the bookstore.
This is so exciting! Good Luck -You are the BEST Mom a child could have!!!!!
I have a daughter with stravism and I have an appointment with Dr. Kaplan in May. My parents are against it because Sunny does not have autism and they do not see why I want an eval. She is 4 and can not catch a ball, runs very funny and slow, can not ride a bike and can not sit still for more than a few minutes. But because she is very smart and doing very well at Pre-K, no body sees any of the other stuff. I am very scare but reading your post was a relief. My family thinks that Dr. Kaplan is just a con and that we are doing such an economic effort it is not was good idea to see him. I now feel better.
Mandy, your comment made my day! I think you are making the right decision, following your instincts. I'm glad you will be seeing Dr. Kaplan. We are certainly seeing good results here.
Blessings to you and your precious little one as you make the journey.
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