There is a French test that is "all the rage" among parents who are treating their autistic kids with bio-med therapies. It's called the urinary porphyrin profile.
Porphyrins are protiens that carry heme. Heme + iron deliver oxygen to the body's cells.
If the body can't get enough oxygen, it can't get rid of toxins efficiently, and ongoing cell damage occurs. Autistic kids are in a constant state of oxidative stress. When they tell you they're tired, believe them. When they act up, consider that physically, they probably don't feel very good. How sweet are you when you feel sick?
The methylated B-12 we use helps by acting like a patch in the broken detoxification system. Many kids on the spectrum show remarkable improvement with this safe and relatively inexpensive therapy (don't go running out buying bottles of B vitamins thinking you'll get the same effect. It has to be "methylated." The "methyl" donor is what patches the hole).
If certain porphyrins are messed up, Mercury is always the # 1 suspect. It leaves distinct footprints.
We got our test results this week.
It appears Mercury has trampled all over both our kids.
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13 comments:
Jeez. This is so interesting. I am learning a lot from you! And I am happy you seem to be figuring it out, bit by bit. ;)
:)
Agghh, can you not get a break? How long will the methylated B take to repair the damage and how effective do you know it to be?
The MB-12 IS my break.
Methyl-B12 is a real key to all of this. We've been using it with Aidan for two years know and he's made incredible strides in physical manifestations and in joint attention.
As for porphyrin profiles, I first heard of that French study when visited with Boyd Haley at the "Power of Truth" rally in D.C. He showed me the study at a meeting of researchers at the NEIHS in Bethesda in late 2005. That study, combined with Burbacher's study comparing exposure to ingested methylmercury to injected ethylmercury and relative accumulation and Jill James's study on disrputed cellular methylation raised the heavy metal-autism connection from plausible to probable.
Do you have a primary source to go to? I'd like to read more.
The source for MB12 is linked in the above piece.
The lab for the porphyrins test is Laboratoire Philippe Auguste and you can also google "porphyrins" and heavy metals for scientific articles on the subject.
Most DAN! doctors probably know of the test by now. At least I hope so.
Thanks, Michelle, I always appreciate being educated by you! I'll forward this info...
Sources:
Powerpoint by Dr. Nataf of Laboratiorie Phillippe Auguste:
http://www.safeminds.org/pressroom/pres_releases/060214Natafpresentation.pdf
And here's his paper, "Porphyrinuria in Childhood Autistic Disorder: Implications for Environmental Toxicity"
http://filariane.org/anglais/DOC/MSFINAL.pdf
Thanks Brendan!
BOTH kids? Key-rist!
you are a relentless reporter and the very best kind of reporter...one who reports and keeps us on top of the story. Thank you!!!
What a wonderful, terrible thing to have confirmation of. It is a testament to your perseverence and love for your kids that you have gained so much knowledge. Thanks for sharing the information you've worked so hard to get.
dammit, DAMMIT.
STUPID, DUMBASS HEAVY METALS.
GRRRRRRRRRRRRRRRRRRRRR
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