CHICAGO - The country's leading pediatricians group is making its strongest push yet to have all children screened for autism twice by age 2, warning of symptoms such as babies who don't babble at 9 months and 1-year-olds who don't point to toys.
Many children are developing perfectly normally and regress after they are two years old.
The advice is meant to help both parents and doctors spot autism sooner. There is no cure for the disorder(there are many recovered children), but experts say that early therapy can lessen its severity.
Symptoms to watch for and the call for early screening come in two new reports. They are being released by the American Academy of Pediatrics on Monday at its annual meeting in San Francisco and will appear in the November issue of the journal Pediatrics and on the group's Web site — http://www.aap.org/.
The reports list numerous warning signs, such as a 4-month-old not smiling at the sound of Mom or Dad's voice, or the loss of language or social skills at any age. My daughter smiled at 6 weeks old and kept smiling. She talked early and never lost her language.
Experts say one in 150 U.S. children have the troubling developmental disorder.
"Parents come into your office now saying 'I'm worried about autism.' Ten years ago, they didn't know what it was," ten years ago it was only one in 10,000 children said Dr. Chris Johnson of the University of Texas Health Science Center in San Antonio. She co-authored the reports.
The academy's renewed effort reflects growing awareness since its first autism guidelines in 2001(hard not to be aware when it's now one in 84 boys). A 2006 policy statement urged autism screening for all children at their regular doctor visits at age 18 months and 24 months. Three different pediatricians and one neurodevelopmental specialist at a prestigious childhood medical center did not recognize symptoms in Riley and blew me off completely when she was three years old.
The authors caution that not all children who display a few of these symptoms are autistic and they said parents shouldn't overreact(typical insulting language used by physicians when they don't have an answer) to quirky behavior.
Just because a child likes to line up toy cars or has temper tantrums "doesn't mean you need to have concern, if they're also interacting socially and also pretending with toys and communicating well," (Riley lined up toys, tantrumed, and communicated well) said co-author Dr. Scott Myers, a neurodevelopmental pediatrician in Danville, Pa.
"With awareness comes concern when there doesn't always need to be," he said. "These resources will help educate the reader as to which things you really need to be concerned about." If the mother is concerned, the doctor damn well better be concerned. Bottom line.
Another educational tool, a Web site that debuted in mid-October, offers dozens of video clips of autistic kids contrasted with unaffected children's behavior. That Web site — http://us.rd.yahoo.com/dailynews/ap/ap_on_he_me/storytext/autism_screening/25002893/SIG=10u41jtkj/*http://www.autismspeaks.org/ — is sponsored by two nonprofit advocacy groups: Autism Speaks (The extremely wealthy "connected" founders of Autism Speaks basically sold their daughter down the river when she implicated vaccines as the cause of her child's autism on the Oprah Winfrey show) and First Signs. They hope the site will promote early diagnosis and treatment to help children with autism lead more normal lives.
The two new reports say children with suspected autism should start treatment even before a formal diagnosis. They also warn parents about the special diets (that have clearly helped sooooooooo many children) and alternative treatments (the things that have helped Riey most) endorsed by(brave) celebrities, saying there's no proof those work. Riley is proof.
No time for your God damned double blind placebo controlled studies. RILEY IS PROOF.
Recommended treatment should include at least 25 hours a week of intensive behavior-based therapy (which the average family cannot afford), including educational activities and speech therapy, according to the reports. They list several specific approaches that have been shown to help.
For very young children, therapy typically involves fun activities, such as bouncing balls back and forth or sharing toys to develop social skills; there is repeated praise for eye contact and other behavior autistic children often avoid.
Mary Grace Mauney, an 18-year-old high school senior from Lilburn, Ga., has a mild form of autism that wasn't diagnosed until she was 9(a failure of her doctors, perhaps understandable then, unconscionable now).
As a young girl, she didn't smile, spoke in a very formal manner and began to repeat the last word or syllable of her sentences. She was prone to intense tantrums, but only outside school you're lucky. There, she excelled and was in gifted classes. Yes, these children have many gifts.
"I took her to a therapist and they said she was just very sensitive and very intense and very creative," said her mother, Maureen, 54. Blew you off, huh mom?
Pediatricians should send such children for "early intervention as soon as you even think there's a problem," Johnson said.
Dr. Ruby Roy, a pediatrician with Loyola University Medical Center, who treats at least 20 autistic children, applauded the reports.
"This is a disorder that is often missed, especially when it's mild, and the mild kids are the ones ... who can be helped the most," Roy said.
Dr. Dirk Steinert, who treats children and adults at Columbia St. Mary's clinic in suburban Milwaukee, said the push for early autism screening is important — but that it's tough to squeeze it into a child's regular wellness checkup. Some pediatricians have tried scheduling a visit just to check for developmental problems, when children are 2 1/2. The problem is that insurance doesn't always cover these extra visits, Steinert said.
Insurance has covered very little on the path to Riley's recovery. Very little.
And that's all I'm sayin'.