I spoke with the grandfather of a young child with autism yesterday. They'd been to the Cleveland Clinic for an evaluation and he said while there, they received a packet warning them of the "unproven" various bio-med therapies they SHOULD NOT try.
The family had no idea there were such things as chelation, methyl-b12, anti-virals, hyperbaric oxygen, etc. They didn't know about the GF/CF diet.
They used the guide and googled all the forbidden therapies.
The morning after this child's second MB12 shot, his mother woke him up for school and he rolled over and said,
"Good morning Mommy."
They were the first words he'd ever spoken, to anyone.
* Correction. I spoke to the grandfather again today to make sure I had my story straight. Did I hear that right? Actually, it was the morning after the child's first MB12 shot that he spoke, not his second one.
Subscribe to:
Post Comments (Atom)
21 comments:
That mother had probably never heard a more beautiful sound.
Any idea whether she related this info to the Cleveland Clinic? (The less Zen side of me is thinking horsewhips....)
Whoa.
WHOA.
You just made me tear up and get chills at the same time. Cool!
We will look back on these times as The Dark Ages of mainstream medical autism treatment. My God. How long will it take for the APA joining with DAN (supposedly) to not have the biomed approach regarded as voo doo and witch doctoring?
As Jenny McCarthy says, "I will not shut up..."
That's so awesome. I LOVE hearing stories of rebel parents. LOL
My whole body reacted to this story, and then I cried.
Wow.
The education you provide is awe inspiring. I learn so much from you.
wow. that's powerful.
we've done not to much of this but i was always surprised when people balked at our GFCF diet and digestive enzymes. it was only after those that fluffy told us spontaneously that he loved us. so obvious that sometimes these sort of issues are a huge part of the picture.
Not surprised, still sickened. The Clinic runs a straight ABA school for autism. It's against their entire being to "treat" kids with autism with anything other than behavioral therapy. You know I lived in Cleveland for a decade. I don't miss their ass backwards thinking. University Hospital is actually worse than The Clinic. Home of Dr. Max Wiznitzer, who always testifies against autism families in vaccine injury cases.
Got a heart problem? Go to the Clinic.
I love the thought of parents googling "forbidden" therapies.
Hmmmm....Kim. I think their refusal to treat kids on the spectrum signifies a BIG heart problem on behalf of the CC machine.
This is an amazing story. I am glad they got the information that they needed.
Wow.
:)
Places like this are horrible. There is a private ABA center in New England that now requires parents to sign documentation forbidding them to use biomedical treatments and forbids them from seeing certain doctors (who believe in biomedical). Why parents agree to this is baffling to say the least. This center is quite sucessful at brainwashing parents into thinking anything biomedical is all "psuedoscience".
D-U-M-B is the only word to describe the parents who agree with this and who would sign their children over to this sickening place.
Dear Anon,
I understand you frustration, but "afriad" and "uninformed" and "coerced" and "intimidated" might be better choices of words.
It IS maddening when you watch your kids recovering and know there are forces out there that would hold them back.
Hi Michelle:
I have met several parents whose kids are in this center. What they say about parents who follow biomedical is quite nasty and often refer to biomed parents as crazy. These parents not uniformed at all but side with the frightening people who run that center. Trust me, they are DUMB! This center loves parents who follow like a bunch of cows and who will bad mouth anything having to do with biomedical. It's just a VERY nasty place full of parents who think that shoving Cheetos in a kids mouth all day is considered part of a good education.
I am a big believer in ABA. I also believe that ABA plus biomed makes the real difference in many of the kids and for a center to deny the parent that right is just unethical to me.
I have talked to a few parents whose children have physically gotten worse in these places but who refuse to believe that biomed has any part in treating their kids. These are often the same parents who will focus all of their energy and attention on raising money for these places (who, by the way, already make about $80,000-$90,000 per year on each kid in terms of tuition.) You will also see a very diluted version of ABA going on in these places compared to the well known, high quality agencies.
Maybe these parents should wise up and do a little research and focus on what's best for their kids.
My son goes to a school for children with autism here in central PA. All though the school does not discourage the practice of bio-medicals, neither does the staff speak openly about it. As if they have been instructed to not talk to me. There are a few on the staff who will talk to me and of course I tell his imediate team when ever there is a change in his program, but other than that it's like I am practicing voo-doo. Most of the parents are using psychotropic drugs (insanity in my mind) in order to control their children's behaviors. I have tried multiple times to speak with these parents to no avail. I have given up.
My son may never recover from autism but looking at him you can see how healthy he is compared to his classmates (who are on the drugs).
I would never allow any school to tell me that we can't use anything we deem helpful to our child.
We were told by my sons's dx doc that we should watch out for uncouth people who would try to take advantage of us by selling us on the idea of supplements and diet helping our nonverbal son. We did speech therapy for 6 months and saw very little improvement; however, once we started the diet and then followed with the MB12... Wow! We had words, words, and more words. Today he is in a typical kindergarten classroom... and very chatty! ;-)
I understand the frustration of feeling misunderstood and ridiculed as a biomed parent. I understand the feeling of beating your head against a wall trying to convince people of something they don't want to hear.
I am totally FOR shining a light onto the practices of big establishments who would thwart kids from getting therapies that might benefit them.
I will not however condone attacking other parents. Even if they do it first. It isn't helping anyone, it won't get you anywhere and therefore I'm not publishing any more comments of that variety.
As parents we're all doing our best, based on what we know (or can handle knowing) at the time.
But I do get the frustration. I really do.
Hey Michelle,
Totally agree with your last post.
We're all in different places and I sincerely believe that some parents (and docs for that matter) just aren't *ready* to confront the truth and all the pain that comes with it!
I vividly remember when I faced the fact that it was me who held my son down for his shots -- it felt like I'd been punched in the gut!
The pain was incredible.
So yes, tolereance for other parents is paramount.
Kelli
I am all for tolerance for parents regarding what they think is best for their own chidlren. What I don't agree with are the people who continually bash parents for implementing biomed protocols.
Post a Comment