Our fundraising concert for Riley's service dog is tomorrow. There will likely be many in attendance who don't know what Asperger's is. Recently, we sat down as a family and discussed what we want people to know about Asperger's. We'll be distributing the following information at the concert:
About Asperger’s
Asperger’s is a high functioning form of autism. Most people with Asperger’s have heightened sensory systems and difficulty reading social nuances. Many with Asperger’s have low frustration tolerances. Children with Asperger’s may have gross and fine motor delays. The Aspergian may have narrow areas of interest, and may appear to have a lack of empathy.
What Riley wants you to know
-I am trying my best even when I have a hard time.
-I am unique.
-I am a sensitive person.
-I sometimes have a hard time making friends because I don't know what to say.
What Seth wants you to know
-I love my sister.
What Todd and Michelle want you to know
- An impaired ability to read social cues or facial expressions does not equal a lack of empathy. Riley is an extremely empathetic child but sometimes situations have to be explained to her before empathy is evident.
- Bio-medical treatments for autism exist, and children are recovering to various degrees. Riley has made huge strides over the last several years.
-Medical insurance companies routinely discriminate against children with autism, refusing coverage for needed services. This has happened to us repeatedly.
-We are not anti-vaccine, but we believe the current government mandated vaccine schedule is too much too soon, and we encourage parents to educate themselves on vaccine safety. One size does not fit all. www.4ahealing.com
-Riley is the sweetest, kindest person you will ever meet. She is a gifted writer and artist. She and Seth are our joy, and our greatest blessings.
We plan on having a wonderful, family event. Happy holidays everyone!
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17 comments:
What Seth wants you to know
-I love my sister.
Simply beautiful.
All the best with the fund raiser!
Have fun, and raise lots o' cash!!
Seth's description of his sister's Asperger's says it all!!!
Have a wonderful time. Give us an update on how things are going towards the goal when you get a chance...
Well said - all of you! Best of luck with your fund raiser!
Best wishes tomorrow. Wish we could be there.
Here's hoping all goes well -very well -with your fund raising concert for RIley!
There is a single mother in our area who has an autistic child and is trying to raise funds too for a special "helper" dog. Thought maybe you would appreciate this comment made in an article in our newspaper about autism that "It affects only 1 in about 150!" How's that for incorrect writing? My daughter and I about dropped our teeth when we read that as obviously the writer, as well as the editor, had no cluel about the error in the article. Yes, the numbers are correct, but the way it is written, not very well put together.
Wishing you bankrolls of success with the concert! :-)
I love what you said, and I will be with you in Spirit at the concert. Rooting for you guys for a successful event. Have fun.
I hope the concert goes well and that Riley soon has her dog. Wish I was in a position to donate something.
This is lovely. I could totally feel the spirit of your family! Beautiful!
Blessings this new year!
Can we send this out, to, oh, I don't know...
THE ENTIRE COUNTRY????
Love.
That alone was beautiful music. I can hear the dog barking now. Good luck with the fundraiser. K
Good luck tonight - hoping that Riley meets her puppy very, very soon!
Loud cheering from over here!
What all of us want your family to know:
-You guys are the best. We love you.
and a little PS at the bottom - by the way, Riley has an international fan club!
Have a great time at the concert, here's hoping for a big boost to the fund.
Really nice!
I know that one thing I told our son's class last year (before we were homeschooling) was that he really liked them all and was often talking about the kids in class. But, he has a hard time remembering their names. So, please to not think that he doesn't want to be friends with them, just because he can't remember their names.
I actually did a small presentation to his class and then allowed for some question time afterwards. It was really positive for everyone.
I just found your blog and I realize "What We Want People to Know" is a bit old, but I'm trying to figure out what the service dog will do for your daughter. I have a son on the spectrum with ADHD and he is also visually impaired, but I have never considered a service dog or had it suggested. Can you elaborate or point me to the right post?
My blog is http://spectrumkids.blogspot.com
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