Thursday, January 31, 2008
Wednesday, January 30, 2008
The CDC and the American Academy of Pediatrics are trying to get it off the air. They do not want you to see it because the episode deals with vaccine injury and autism.
ABC CONTACT INFORMATION
Nicole NicholsSenior Vice President of Entertainment Communications for "Eli Stone"Email: Nicole.Nichols@abc.comPhone: (818) 460-5267
Charissa GilmoreVice President of Media Relations for "Eli Stone"Email: Charissa.Gilmore@abc.com Phone: (818) 460-7950
Remember, in your e-mail or phone call, to ask for what you want, don't push against what you don't want. Pro freedom, not anti-censorship. Love.
For more info go to Age of Autism.
A couple of weeks later, I ran into her after a yoga class. Somehow we got to talking about my three year old daughter. About her heightened sensitivities, to sound, to light, to touch, to everything.
When I stopped speaking, she paused, and said,
"What a cool disorder."
I raised a brow.
"No, really." She said. "A lot of people abuse drugs to get that effect. To feel things more brightly."
She was no more than sixteen, and she was the first person to say anything positive to me about Riley's sensory issues.
Teenagers are so cool.
Tuesday, January 29, 2008
Big Pharma (in the name of the American Academy of Pediatrics) is trying to censor a television program who dare run a storyline about vaccine injury.
If your pediatrician tells you he won't see your family if you refuse certain or all vaccines consider yourself lucky he showed you his true colors and get out of there like a bat out of hell. Also...if he pats your tummy? Smack him.
Do your homework and decide for yourself if the benefits outweigh the risk. Your baby, your terms. Period.
P.S. I wonder how the drug companies knew all the right questions for the actors to ask? Hmm....apparently they've done their homework?
Monday, January 28, 2008
2) Kelly does not like to talk on the phone.
3) Suzy deliberately squirts ketchup on people.
4) Jenny wants chickens.
5) Kim gave birth "all natural" three times to spare her children from the harmful effects of medications and chemicals.
6) Drama Mama is afraid of fish.
7) Carrie lives in a nunnery.
I can't remember what I had for dinner two hours ago, but all this? It sticks with me.
Saturday, January 26, 2008
Seth's preschool had a dance tonight.
Friday, January 25, 2008
So much shame.
I got out. Went to college. Moved away. Healed.
The pull to write was strong. Day after day, it woke me from a deep sleep urging me to go someplace I'd never been. It didn't feel like a choice. I thought it would be a story about my precious little girl. All we'd been through with autism. What we'd learned.
But that story is still in process. A different story needed to be told.
Around this time, we were driving an hour and a half down a rural highway to Riley's sensory processing therapy. Rundown houses dotted the side of the road for miles and miles.
It was shocking.
That life, so far behind me, was still there.
"There are girls living in those houses." I thought to myself.
Turns out my story is about a precious little girl. One who needn't be ashamed. One who did her very best and kept going.
With the completion of my manuscript I'm finally letting my guard down. And it feels not like the end of the world, but the beginning.
Thursday, January 24, 2008
Can I come over today?
On the weekend?
Then what about next weekend?
When she is at our house, she wants to eat.
Can I have a breakfast bar?
Some string cheese?
Bread and butter?
Another breakfast bar?
Can I have another?
Part of me wants to feed the child. Anything she wants. She's hungry. For something.
But part of me feels I am not serving her if I don't teach her it is impolite to invite herself over all the time and to eat your host out of house and home.
Part of me is just so damn glad someone wants to play with Riley. But I'm not so sure Riley's the draw, and that makes me just a little queasy.
She's a sweet girl.
I don't know the answer.
Wednesday, January 23, 2008
Boca Raton, FL - 12/8/01
© 1997-2005 Abraham-Hicks Publications. www.abraham-hicks.com
Tuesday, January 22, 2008
The new house is old. The same folks owned it for 58 years and took exceptional care of it. Still, she's fashionably mature. As in, I will need to use a match to light the stove in the kitchen. This thought makes me smile.
After the first deal didn't take, I sighed and told our wonderful realtor, "I would so love to live within walking distance of the school." (The first house wasn't).
The Universe replied, "Why didn't you just say so?" and promptly tapped on Mary's shoulder, giving her instructions to put out an inter-office voicemail to every agent at her company's many branches, alerting them to what we were looking for and where.
The house we are buying was not even on the market yet (apologies to any Clevelanders trying to sell their homes)! It is just around the corner from Riley's school. Next year Seth will go there too. Two-tenths of a mile we'll walk. I'll kiss them good-bye, and see them six hours later. Ahhh yeah...are you diggin on that? But wait....where was I?
One year ago we were living in Lynchburg, Va. We had no idea we'd be in Cleveland, but I was asking. Here we are, moving into a beautiful home in a great community with a school district committed to giving Riley the best education she is capable of. We're just getting started!What do you want that you've yet to ask for?
Saturday, January 19, 2008
Friday, January 18, 2008
Early on in our friendship, I told her how good it was to have someone in my life who appreciated the F word as much as I. Since then, she has dutifully peppered each and every correspondence with over the top profanity. I reciprocate, of course.
Now...if you met either one of us personally, we probably would not include curse words in our general conversation, probably. We do know how to act civilized.
This morning, on XM radio, Diane Keaton was interviewed by Oprah's best friend Gayle King.
It went something like this....
Gayle: Diane, what the F--- is wrong with you saying f--- on GMA on live f---ing television? Didn't your mother ever tell you we're not allowed to say f--- publicly?I was rolling! Sweet, Gayle King? Sweet, Diane Keaton?
Call me unrefined, but if loving "colorful" language is wrong, I don't wanna be right.
Carrie and I may be sailors, but apparantly we're in good company.
Thursday, January 17, 2008
Wednesday, January 16, 2008
We know what the mood swings, round the clock hot flashes (I'm only 39!), fatigue, three month constant PMS with no "relief," damn the whole world to hell has been about.
A little something called my thyroid.
Seems my body has been making anti-bodies to attack it.
Note to body: Stop it already!
I've been walking around with a broken thermostat. First comes a chill I can't shake. Two minutes later, I'm peeling off layers of clothes.
My wonderful doctor says it is a permanent condition and I need to treat it with medication. I listen. I get the prescription. I start taking the thyroid pills. But I don't believe her.
You see, I've shook hands with a 33 year old man who was severely autistic as a child. He is not autistic now. No traces. He graduated from Brown University and has a successful career.
I have a girl who was once my demon, but is now my joy.
I googled thyroid and the first picture that came up showed the little butterfly gland right there in front of the voice box.
Interesting. This, as I begin to send out manuscripts.
Dear Little Thyroid,
Let's find out what you really need, and give it to you.
* photo from www.abc.net.au
Tuesday, January 15, 2008
Seriously, get some. Keep it in the kitchen. It works!
Monday, January 14, 2008
"Us?" I would ask, hands to my chest, over my heart."Yes you." She would nod, smiling
With Alice, I'd be fabulous.
Sunday, January 13, 2008
What if "autism" is something gone terribly right?
I know. That statement might rub me just the teensiest bit the wrong way if my child was smearing poop on the walls, if she was still screaming 24/7, or if she had never said, "Mommy." It will inevitably rub me the wrong way at some point this very day, when my "high functioning" child displays her inflexibility, or when I catch myself worrying about her future.
But I'm not talking about the daily nitty-gritty. I'm talking about the big picture.
There is a line in A Course in Miracles that says, "I do not know what I am looking at so I must not judge what I see." It applies to all situations.
A teacher once told me a parable about an ant and a tree in winter. To the ant, with it's short life span, the tree looks dead. It's over. The ant is not able to know...from his tiny perspective, what will happen come spring.
We do not yet know the purpose of autism in the grand scheme of the Universe. On a soul level, why are these kids here?
Our daughter has turned our lives inside out and upside down. She has taken us through the fire. We are better people for having had this child. Let's see....the potential for 1 in 150 sets of "better," more compassionate, less judgemental, conscious parents. Not to mention siblings and extended family. Not to mention friends. Not to mention blog readers! What are the ripple effects?
What if I re-direct my thoughts of victimhood and worry, to thoughts of appreciation for what these brave souls are bringing to the planet?
What if, there is more to this epidemic, than I can see?
Friday, January 11, 2008
"Riley became frustrated when she could not hit the ball with a racket. She threw the racket and ran out of the gym."
She merely does what all of us want to do.
I know I shouldn't laugh, but sometimes you just have to. Mostly, because it reminds me of someone else in this family. Though for him it would be a golf club and it would be wrapped around a tree.
HT does not golf.
This is why.
Of course my frustration tolerance is really, really high. Especially when it comes to computers. I have yet to throw one through a window.
I'm practically a saint.
Wednesday, January 09, 2008
Tuesday, January 08, 2008
Hmmm...had I tuned into a gay radio station?
Then alas, the song proceeded to get all Jesus-y.
Not that I have a thing against Jesus. Jesus, from what I hear, was so enlightened he could heal people just by being in their presence. He was a teacher who knew profoundly he was the child of God. He also knew everyone else was.
The thing I dislike about Christian rock is all the "My God is an awesome God" nonsense. The whole "my" thing. As if yours is different from anyone else's.
All That Is, is...all that is.
You will never convince me that any person is going to hell because they don't "know Jesus." To me, that would make All That Is, awfully foolish. Or awfully hateful. And hate is not what makes the world go round.
Above all the dogma, there is One. No one is special because everyone is.
Over the weekend I checked out the Unitarian Universalist church here. We attended a UU church briefly in another state a few years back, but we weren't quite ready for it at the time.
They start their service by saying:
We are the church of the open mind,
the helping hands,
the loving heart.
All spiritual paths are honored. All people are respected.
"Hey kids. I went to a new church this weekend. Do you want to hear about it?"
Riley's first question,
"Mom. Is it a church based on love?"
Sunday, January 06, 2008
We need one another when we would mourn and be comforted.
We need one another when we are in trouble and afraid.
We need one another when we are in despair, in temptation, and need to be recalled to our best selves again.
We need one another when we would accomplish some great purpose, and cannot do it alone.We need one another in the hour of success, when we look for someone to share our triumphs.
We need one another in the hour of our defeat, when with encouragement we might endure, and stand again.We need one another when we come to die, and would have gentle hands prepare us for the journey.
All our lives we are in need, and others are in need of us.
Saturday, January 05, 2008
Got back today from five days in our home town. Little Miss Riley did a great job. No major meltdowns. A few little moments of frustration figuring out her new Webkinz obsession on the computer(thank you Grammy & Grampy), but overall it was a great trip. Both kids had a ball with their grandparents and their cousins.
Got our pizza fix. Nirchi's. Twice.
We are from a very Italian community. I admit it, we look down on those of you who eat Papa Johns or Little Ceasars, or God forbid, Pizza Hut. Nirchi's is big chewy doughy square shaped pieces. Extra cheese, baby. It's the only way to go.
Unless of course you eat Tony's round crust(now you have to go to his brother Nick's 'cause Tony's closed due to "family problems" as the story goes) or Brozetti's (squares). Those are respectable choices. Lately we've heard rumors of "Rossi's" being good, but we weren't going to risk it.
It was truly a wonderful, relaxing trip. HT and I had a date night. Went to a favorite restaurant (The Lost Dog Cafe) and then to see The Debaters. It was awesome. I love me some Denzel Washington. The young actors in the film deserve Oscars. All three of them.
So much more to write about this trip, but for now I'll just say it was a good one. We're back, we're whooped. In a good way.
Now go order your hot pie. You know you want it.
Thursday, January 03, 2008
CHILDREN'S: MIDDLE GRADECourtney Sheinmel's POSITIVELY, the story of a twelve-year-old, HIV-positive, courageous girl who finds hope and redemption in the face of a string of unthinkable tragedies, based on the author's experiences working with the Elizabeth Glaser Pediatric AIDS Foundation, to David Gale at Simon & Schuster Children's, by Alex Glass at Trident Media Group (World English).
Check out Courtney's blog at http://courtneywrites.livejournal.com/.
FYI: She's the next Judy Blume.