I sent the following letter out on Thursday before Easter. I know casually most of the mothers I sent it to. They are good people. PTA moms, etc. We've one definite "yes" so far. I gave it to the girls after school, in sealed envelopes, to deliver to their mothers, and found one little girl reading it in the hall as she was leaving to get on the bus. Another girl was draped over her shoulder, reading it too, put out that she didn't get one. Good sign.
It is agonizing for me to ask for help. The service dog was the first thing we ever enlisted anyone else's help with. Other than that, we've had zero outside support, ever, for anything. It has kept me up at night, scrambling about the activities we will do, and questioning whether this is the right thing to do.
But her eyes. You didn't see her eyes last week on the playground, as she sobbed, and told me how lonely she was. How un-included she felt. I have to do something.
The possibility of rejection is there too. I have more than one friend with kids the same ages as mine, who know how much she struggles, but still can't find time to get our kids together once in a while. How can I expect virtual strangers to get on board? But we already have one yes. And I believe in this community.
So, here we go. I love my girl.
Amen.
Dear_____,
I am writing to you because your daughter has been kind to Riley and I would like to include _______in a group we are starting. As you know, Riley has Asperger’s. One of the traits of Asperger’s is social awkwardness and though Riley desperately wants friends, she doesn’t always understand social nuances or how to navigate the complicated social scene of little girls. She is terrified of asking others to play, or of joining in groups, because she is afraid of being rejected. This year she has become painfully aware of her social isolation, noticing other kids going on play dates after school. As of yet, Riley has never been invited to a friend’s house to play. We have had many tearful afternoons because of this.
I am looking to start a neighborhood Circle of Friends program for Riley. It will be a small peer group (five or six girls)that will help Riley learn about social skills, and provide her with friendship and social interaction. We would meet in our home once a month, do a team building/self esteem type group activity, and then rotate through with weekly play dates. Initially the play dates would be at our house, and after that, perhaps occasionally at yours. It would work out to one play date every five or six weeks if you choose for your child to participate, and if she is willing.
By knowing Riley better, your child will have the opportunity to understand a peer with differences, but who fundamentally wants the same things they do; to feel liked and good about herself. Riley is more like your daughter than unalike.
I know families are busy, and I promise we won’t be trying to force BFF status onto your child. We’re just looking for a series of successful play dates, and for better community understanding of our sweet girl, who is always trying her best.
If you are interested and if your daughter is willing, please let me know. I’m looking to start this in May (Wednesday the 13th) and carry it through the summer if possible.
Thanks so much! It takes a village, especially for a child with special needs.
Sincerely,
Michelle O’Neil
Riley’s mom (phone) (e-mail)
Monday, April 13, 2009
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40 comments:
I think you're really on to something, and pretty soon you'll be showing other parents how to start similar things. You're a born leader and teacher!
A fantastic idea, and wonderful letter. I think so, too, this could be so great. I love the Circle of Friends idea. Please keep us posted! You rock.
This is a letter I'd find hard to refuse...wishing you all the best as you help and guide your daughter through life. You're doing a great job by the sound of things so Ryley has at least one wonderful advantage in her life right now.
If *my* daughter brought home such a letter, I'd be on the phone asking how else I can help! You're awesome. xo
Beautiful. I feel sure this will lead to good things.
What a beautiful letter - looking forward to hearing what the response is!!
Absolutely perfect letter! I predict very good things to come. You're as brave as Riley for putting it out there. XXOO
I'd be all over this like a cheap suit. Who wouldn't?
Beautifully written, sister.
This is what Autism Awareness is.
You are amazing. I would not be surprised if some of the Mom's tell you that their girls are experiencing the same difficulties.
Pay attention, these girls will all benefit from this group.
I insisted on neurotypical involvement in the form of student aides for my son's Adaptive P.E. class this year, 2 young men from the football team stepped up. They have told me that they are having so much fun being involved with this class. They also speak to him when they see him throughout the day, on and off campus. He is thrilled.
You will be teaching not only these girls some compassion, but also their entire family.
Well done! I really hope it turns into something beautiful for Riley.
So great. We did something similar for Max but not as organized. Nice people are nice and the others like to think they are nice so I'm sure you'll get a ton of responses. I'm going to save your letter and share it.
Gail C.
Excellent letter from an Excellent Mom!
I know this is the start of something wonderful for Riley and for all the mom's who let their little girls participate.
xo
Jenn
oh and btw I so get the friends with typical kids who claim to get our kids but are too busy for a playdate.
I have lots of those friends. Funny I don't see them much. ;-)
it's never easy to ask for help, michelle. but this isn't stuff you or riley can do in a vacuum.
may her circle of friends be everything she could hope for!
good job, mama.
She is so lucky to have you. You are a wonderful mother.
I am so blown away by you. What a mom you are! Good idea.
Also, you have inspired me. Because although we can't come play with your baby, we can give such kindness here where we are...There is a little girl with the same issues who goes to Wyatt's school. I have seen her and her mother from time to time in Trader Joe's, and at the park...We met once for a play date last summer, but never again for whatever reason. She told me that her daughter likes Wyatt,and that he is nice to her. He isn't a girl...But maybe we should still reach back out.
Maybe she isn't as brave as you are, and maybe she has been wondering what to do for her little one.
Thank you for reminding me.
;)
That's a thoughtful letter Michelle. How was Chuck E Cheese?
Michelle that is the bravest and saddest thing I have read in a long long time. It moved me to almost cry and believe me I don't cry easily.
Here's hoping it works, it's such a different take on things I just hope it gets through.
HUGE highland hugs!
YES!
Amen. Amen.
We have another "yes!"
i know, as a mom, that would be a tough letter to write--to let yourself and your child be vulnerable and open to rejection. beautifully written and really lovingly done. i have high hopes for you. even 4 girls would be great.
My son Kevin has ADD. It is not the same as Asperger's (as you know) but it too presents social challenges. This summer he is going to be involved in a social skills program at the University of South Florida (we ae in Tampa) at their child development center. This program is specifically designed for kids with Asperger's, ADD, ADHD, OCD etc. The entire 8 week program runs about 2 hours once per week and is costing about 300 dollars. The program includes conversation building, role playing etc. The sessions are even videotaped for later referencing. I am wondering if their might be a program like this in Cleveland at one of their universities. I love the Circle of Friends idea but a program run by some child development experts might be helpful too.
Amazing. You are. This letter gave me chills. Praying for more "Yes!" responses.
I hope you have great success with this. Please keep us posted.
Amazing letter. I am so glad you already have a yes. May there be many more.
Riley has quite a mom. xox
So wonderful! Michelle, your letter is such an inspiration. This is the start of something amazing. I feel it! xoxo
Fan-damn-tas-tic.
Blessings to Riley's Circle of Friends. May it be huge and unbroken.
You've done a really awesome job with the letter! It's perfectly written (I'll be saving a copy).
Best wishes with this and I know we'll hear good things from you soon!
This is of course, a gift to Riley - you always are..but I can't help but focus on what an amazing opportunity this is for the other girls - all of whom have there own insecurities and awkwardness and you are giving them a reason to practice love and understanding with eachother. Mazel Tov!(don't ask I'm not jewish)
The letter was perfect. I can't wait to hear the progress of the group!
I just stumbled onto your blog and I'm in absolute tears reading this letter. It is so heartfelt and honest, and you've found a way to advocate for your daughter, educate others and, hopefully, build a better community for everyone. Moreover, you make me want to consider ways to engage all the children in my son's class... not just those he calls his friends.
This is my first time to your blog and I came here because Rachel pointed it out. I too am in tears (unfortunately I'm also on a train going home.) This type of thing could help so many children. What a great mom you are for doing this. I have a friend with a little girl who suffers from something similar and I'm going to show her this letter. I'm also going to call her for another play date. Thanks for reminding me.
I agree with the writer that said the little girls who come by for playdates will get just as much out of this as your daughter will.
I cannot wait to hear what the response is.
What a big first step. Congratulations.
What an inspiring post. Thank you for the reminder that sometimes friendship means reaching out instead of pulling in. Congratulations on your two responses. I hope you receive many more in the coming days.
If I were in your neighborhood, I would totally sign my kids up. Fantastic idea.
Michelle,
I'm just checking in from Fl tonight and found myself wiping tears away as I read your letter. YOU TOTALLY INSPIRE ME TO BE A BETTER MOM. I wish Ohio wasn't so far from CA because Tim would love to play with Riley (and would probably be the annoying kid who always wanted to play!) Great, great post ... thank you.
am weeping.
and praying.
love
s
We have another yes! That's three so far.
I fall more in love with you every time I come here! You are AMAZING!
OK - wondering how this went for you?? Did it all work as you had hoped.
Beautiful, beautiful letter...
:-0
BB
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